Team:Slovenia/SocietyQuestionnaire

From 2012.igem.org

(Difference between revisions)
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           <span style="margin-left:30px;">No</span><br/>
           <span style="margin-left:30px;">No</span><br/>
           <span style="margin-left:30px;">Not really, I would like to know more about ....</span><br/>
           <span style="margin-left:30px;">Not really, I would like to know more about ....</span><br/>
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+
</li>
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2. Are you receiving treatment with biopharmaceuticals?
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<li>Are you receiving treatment with biopharmaceuticals?
-
         <span style="margin-left:30px;"> Yes</span><br/>
+
         <span style="margin-left:30px;">Yes</span><br/>
-
         <span style="margin-left:30px;"> No</span><br/>
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         <span style="margin-left:30px;">No</span><br/>
-
         <span style="margin-left:30px;"> Not currently, but I have previously.</span><br/>
+
         <span style="margin-left:30px;">Not currently, but I have previously.</span><br/>
-
 
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</li>
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3. Do you agree that biopharmaceuticals in Slovenia are available to all patients who need them?
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<li>Do you agree that biopharmaceuticals in Slovenia are available to all patients who need them?
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           <span style="margin-left:30px;">Yes
+
           <span style="margin-left:30px;">Yes</span><br/>
-
           <span style="margin-left:30px;">No
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           <span style="margin-left:30px;">No</span><br/>
-
         <span style="margin-left:30px;"> I do not know
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         <span style="margin-left:30px;">I do not know</span><br/>
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</li>
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4. Do you believe that the high price limits the use of biopharmaceuticals?
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<li>Do you believe that the high price limits the use of biopharmaceuticals?
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         <span style="margin-left:30px;"> Yes      
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         <span style="margin-left:30px;">Yes</span><br/>     
-
         <span style="margin-left:30px;"> No
+
         <span style="margin-left:30px;">No</span><br/>
-
         <span style="margin-left:30px;"> Partially
+
         <span style="margin-left:30px;">Partially</span><br/>
-
         <span style="margin-left:30px;"> I do not know
+
         <span style="margin-left:30px;">I do not know</span><br/>
-
 
+
</li>
-
5. Are you experiencing any adverse effects because of the interferon treatment?
+
<li>Are you experiencing any adverse effects because of the interferon treatment?
-
         <span style="margin-left:30px;"> No side effects
+
         <span style="margin-left:30px;">No side effects</span><br/>
-
         <span style="margin-left:30px;"> Mild side effects
+
         <span style="margin-left:30px;">Mild side effects</span><br/>
-
         <span style="margin-left:30px;"> Strong side effects
+
         <span style="margin-left:30px;">Strong side effects</span><br/>
-
         <span style="margin-left:30px;"> I haven't been receiving therapy yet
+
         <span style="margin-left:30px;">I haven't been receiving therapy yet</span><br/>
-
 
+
</li>
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6. How much does the need for the repetitive injections of interferon adversely affect the quality of your life?
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<li>How much does the need for the repetitive injections of interferon adversely affect the quality of your life?
-
         <span style="margin-left:30px;"> Strongly
+
         <span style="margin-left:30px;">Strongly</span><br/>
-
         <span style="margin-left:30px;"> Medium
+
         <span style="margin-left:30px;">Medium</span><br/>
-
         <span style="margin-left:30px;"> Not at all
+
         <span style="margin-left:30px;">Not at all</span><br/>
-
 
+
</li>
-
7. Do you think it would be beneficial to develop a therapy with human cells which would produce biological drugs inside the diseased tissue and thus reduce both side effects and the need for frequent drug application?
+
<li>Do you think it would be beneficial to develop a therapy with human cells which would produce biological drugs inside the diseased tissue and thus reduce both side effects and the need for frequent drug application?
-
           <span style="margin-left:30px;">Yes
+
           <span style="margin-left:30px;">Yes</span><br/>
-
         <span style="margin-left:30px;"> No
+
         <span style="margin-left:30px;">No</span><br/>
-
         <span style="margin-left:30px;"> Maybe
+
         <span style="margin-left:30px;">Maybe</span><br/>
-
 
+
</li>
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8. Which of the following would be most important for you regarding that kind of treatment:
+
<li>Which of the following would be most important for you regarding that kind of treatment:
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         <span style="margin-left:30px;"> Efficiency
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         <span style="margin-left:30px;">Efficiency</span><br/>
-
         <span style="margin-left:30px;"> Safety
+
         <span style="margin-left:30px;">Safety</span><br/>
-
         <span style="margin-left:30px;"> Price
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         <span style="margin-left:30px;">Price</span><br/>
-
         <span style="margin-left:30px;"> Ethical considerations
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         <span style="margin-left:30px;">Ethical considerations</span><br/>
-
 
+
</li>
-
9. Would you participate in a clinical study using that kind of therapy?
+
<li>Would you participate in a clinical study using that kind of therapy?
-
           <span style="margin-left:30px;">Yes
+
           <span style="margin-left:30px;">Yes</span><br/>
-
         <span style="margin-left:30px;"> No
+
         <span style="margin-left:30px;">No</span><br/>
-
         <span style="margin-left:30px;"> Maybe
+
         <span style="margin-left:30px;">Maybe</span><br/>
-
 
+
</li>
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10. Would you change your mind if you knew the cells are genetically modified?
+
<li>Would you change your mind if you knew the cells are genetically modified?
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         <span style="margin-left:30px;"> Yes
+
         <span style="margin-left:30px;">Yes</span><br/>
-
         <span style="margin-left:30px;"> No
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         <span style="margin-left:30px;">No</span><br/>
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</li>
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11. Do you know what synthetic biology is?
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<li>Do you know what synthetic biology is?
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         <span style="margin-left:30px;"> Yes
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         <span style="margin-left:30px;">Yes</span><br/>
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         <span style="margin-left:30px;"> No
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         <span style="margin-left:30px;">No</span><br/>
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         <span style="margin-left:30px;"> I have heard about it
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         <span style="margin-left:30px;">I have heard about it</span><br/>
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</li>
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12. Do you support the use of synthetic biology for solving health issues and developing biofuels or new materials?
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<li>Do you support the use of synthetic biology for solving health issues and developing biofuels or new materials?
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         <span style="margin-left:30px;"> Yes
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         <span style="margin-left:30px;">Yes</span><br/>
-
         <span style="margin-left:30px;"> No
+
         <span style="margin-left:30px;">No</span><br/>
-
         <span style="margin-left:30px;"> Maybe
+
         <span style="margin-left:30px;">Maybe</span><br/>
-
 
+
</li>
-
13. Would you be willing to consume genetically modified food (GM food) that would have better taste, looked more appealing or would be healthier in general?
+
<li>Would you be willing to consume genetically modified food (GM food) that would have better taste, looked more appealing or would be healthier in general?
-
         <span style="margin-left:30px;"> Yes
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         <span style="margin-left:30px;">Yes</span><br/>
-
         <span style="margin-left:30px;"> No
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         <span style="margin-left:30px;">No</span><br/>
-
         <span style="margin-left:30px;"> Maybe
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         <span style="margin-left:30px;">Maybe</span><br/>
-
 
+
</li>
 +
</ol>

Revision as of 23:53, 25 September 2012


Questionnaire for patients undergoing therapy for the hepatitis C (translated to English from Slovenian)

We are a student research team, participating in the 2012 iGEM competition and in our project we are developing a new type of a biological drug delivery system as a new treatment possibility.

This questionnaire is anonymous and the answers will help us with our project.

Instructions: Circle the number before the answer that is most true for you. Please answer honestly and skip any questions you do not wish to answer.

Age:...............

    Education:
  1. Primary school
  2. High school
  3. Student
  4. University education
  5. PhD

A short description of our project:

Biopharmaceuticals are among most effective and most expensive drugs for the treatment of viral hepatitis, diabetes, cancer and other diseases. Standard therapy with biological drugs requires multiple doses, often as daily or weekly injections of the biological drug, that is usually obtained from mammalian cell cultures and purified. The idea of our project is to use drug producing cells and enclose them in microcapsules that would be administered directly into the target tissue. The therapy would allow for noninvasive regulation under medical supervision. It would be possible to control and eventually destroy the therapeutical cells, when the therapy is no longer needed. We believe this new approach would reduce side effects, since the therapeutic would be continuously synthesised in its target tissue and drug concentrations elsewhere in the body would be lower. This kind of therapy would be more efficient and widely available compared to standard treatments in use today.

  1. Do you understand the description of our project?
    Yes
    No
    Not really, I would like to know more about ....
  2. Are you receiving treatment with biopharmaceuticals? Yes
    No
    Not currently, but I have previously.
  3. Do you agree that biopharmaceuticals in Slovenia are available to all patients who need them? Yes
    No
    I do not know
  4. Do you believe that the high price limits the use of biopharmaceuticals? Yes
    No
    Partially
    I do not know
  5. Are you experiencing any adverse effects because of the interferon treatment? No side effects
    Mild side effects
    Strong side effects
    I haven't been receiving therapy yet
  6. How much does the need for the repetitive injections of interferon adversely affect the quality of your life? Strongly
    Medium
    Not at all
  7. Do you think it would be beneficial to develop a therapy with human cells which would produce biological drugs inside the diseased tissue and thus reduce both side effects and the need for frequent drug application? Yes
    No
    Maybe
  8. Which of the following would be most important for you regarding that kind of treatment: Efficiency
    Safety
    Price
    Ethical considerations
  9. Would you participate in a clinical study using that kind of therapy? Yes
    No
    Maybe
  10. Would you change your mind if you knew the cells are genetically modified? Yes
    No
  11. Do you know what synthetic biology is? Yes
    No
    I have heard about it
  12. Do you support the use of synthetic biology for solving health issues and developing biofuels or new materials? Yes
    No
    Maybe
  13. Would you be willing to consume genetically modified food (GM food) that would have better taste, looked more appealing or would be healthier in general? Yes
    No
    Maybe